Let’s Defeat Pediatric Brain Tumors Together
Thousands of children and their parents hear the words “brain tumor” uttered by their doctors every year. For those patients and their families, the impact of this diagnosis is overwhelming and life-changing forever.
Pediatric brain tumors are the leading cause of cancer deaths in all youth aged 19 years and under, surpassing leukemia. For high-grade pediatric gliomas, the diagnosis is particularly grim. For one type called DIPG, most patients survive nine months, or about as long as the typical school year.
There currently is no consistent standard of care for these kids, and few treatments. This is completely unacceptable.
The Defeat Pediatric Brain Tumors Research Collaborative is a powerful, unique global research and drug discovery program which aims to improve clinical outcomes for pediatric brain tumor patients – and ultimately find a cure for brain tumors to save these kids.
The program infrastructure, researchers, and four interrelated “cores” that make up the program are being deployed, but we need funding to get to the results our kids need to survive.
“We’ve entered a new era of opportunity due to new understanding of the molecular-basis of brain tumors to dramatically change therapies. Before NBTS took up the charge, there was not yet this uniform sharing of specimens and information in real time. NBTS has approached this framework in the right way to lay the groundwork for new treatments.”
– Dr. Roger Packer, MD Children’s National Hospital, Washington DC